rare diseases Georgia

'Victory achieved': Parents of children with Duchenne syndrome in Georgia end protest

Georgia

June 05, 2026

The authorities have agreed to set up a working group to secure funding and procurement of the necessary medicines.

Parents of children with Duchenne muscular dystrophy meet Georgian prime minister

Georgia

June 03, 2026

Above all, the parents are demanding that the government import and fund the medicines their children need.

Georgian students raise 1.6m lari for children with Duchenne muscular dystrophy

Georgia

May 25, 2026

The campaign came in response to the government’s refusal to fund treatment.

Fake accounts involved in campaign against Duchenne muscular dystrophy drugs in Georgia — Myth Detector

Georgia

April 30, 2026

The investigation identified 75 fake accounts

Georgian Dream health minister: Patient care should not be part of political agenda

Georgia

April 29, 2026

“This process should be based not on public confrontation, but on cooperation with patients and their families.”

'We have very little time': How children with Duchenne muscular dystrophy in Georgia are fighting for their lives

Georgia

April 23, 2026

For a year, parents of children with a rare and severe genetic condition have been urging the authorities to allow the import of costly medicines.