{"id":88972,"date":"2024-07-02T18:06:29","date_gmt":"2024-07-02T14:06:29","guid":{"rendered":"https:\/\/jam-news.net\/az\/?p=88972"},"modified":"2024-07-02T20:23:26","modified_gmt":"2024-07-02T16:23:26","slug":"az%c9%99rbaycanda-talassemiya-x%c9%99st%c9%99l%c9%99ri","status":"publish","type":"post","link":"https:\/\/jam-news.net\/az\/az%c9%99rbaycanda-talassemiya-x%c9%99st%c9%99l%c9%99ri\/","title":{"rendered":"Talassemiyal\u0131 u\u015faqlar\u0131n valideynl\u0259ri niy\u0259 d\u0259l\u0259duzlar\u0131n qurban\u0131na \u00e7evrilir?"},"content":{"rendered":"\n

Az\u0259rbaycanda talassemiya x\u0259st\u0259l\u0259ri<\/em><\/p>\n\n\n\n

S\u0259h\u0259r saatlar\u0131. Milli Hematologiya v\u0259 Transfuziologiya M\u0259rk\u0259zi (ke\u00e7mi\u015f Talassemiya M\u0259rk\u0259zi) dig\u0259r g\u00fcnl\u0259rd\u0259 oldu\u011fu kimi bu s\u0259h\u0259r d\u0259 insan izdiham\u0131 il\u0259 \u00fcz-\u00fcz\u0259dir. M\u0259rk\u0259zin qeydiyyat \u015f\u00f6b\u0259si binan\u0131n birinci m\u0259rt\u0259b\u0259sind\u0259 yerl\u0259\u015fir. \u0130lk d\u0259f\u0259 qeydiyyata d\u00fc\u015f\u0259c\u0259k talassemiya x\u0259st\u0259l\u0259ri burada \u00f6z n\u00f6vb\u0259l\u0259rini g\u00f6zl\u0259yirl\u0259r.  <\/p>\n\n\n\n

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Yuxar\u0131 m\u0259rt\u0259b\u0259l\u0259r\u0259 qalxd\u0131qca x\u0259st\u0259l\u0259rin say\u0131 daha da art\u0131r. Diaqnostika, laboratoriya, m\u00fcalic\u0259 v\u0259 sair\u0259 ayr\u0131-ayr\u0131 \u015f\u00f6b\u0259l\u0259rin qar\u015f\u0131s\u0131nda onlarla insan h\u0259kim q\u0259buluna t\u0259l\u0259sir. D\u0259hlizl\u0259rd\u0259ki skamyalar\u0131n ham\u0131s\u0131 tutulub. X\u0259st\u0259l\u0259rin aras\u0131nda azya\u015fl\u0131 u\u015faqlar \u00e7oxluq t\u0259\u015fkil edir. <\/p>\n\n\n\n

1 ya\u015f 7 ayl\u0131q Arzu da onlardan biridir. N\u0259n\u0259sinin quca\u011f\u0131nda oturub, arabir yan\u0131ndan \u00f6t\u00fcb ke\u00e7\u0259nl\u0259rin \u00fcz\u00fcn\u0259 g\u00fcl\u00fcms\u0259y\u0259n k\u00f6rp\u0259y\u0259 3 ayl\u0131q ik\u0259n talassemiya diaqnozu qoyulub.   <\/p>\n\n\n\n

\u201cArzu 40 g\u00fcnl\u00fck olanda bird\u0259n-bir\u0259 s\u00fcdd\u0259n k\u0259sildi. Suyu bel\u0259 \u00e7\u0259tinlikl\u0259 i\u00e7irdi. R\u0259ngi sar\u0131mt\u0131l olmu\u015fdu. \u00c7ox az h\u0259r\u0259k\u0259t edirdi. O g\u00fcn\u0259 q\u0259d\u0259r is\u0259 normal h\u0259r\u0259k\u0259tli u\u015faq idi. B\u0259l\u0259kd\u0259 g\u00fccl\u0259 dayan\u0131rd\u0131. Bel\u0259 olanda ba\u015fa d\u00fc\u015fd\u00fck ki, u\u015faqda n\u0259s\u0259 d\u00fcz deyil\u201d,<\/em> – Z\u00f6hr\u0259 Sar\u0131yeva n\u0259v\u0259si Arzu haqq\u0131nda dan\u0131\u015f\u0131r.  <\/p>\n\n\n\n

Sar\u0131yevl\u0259r ail\u0259si K\u00fcrd\u0259mir rayonundand\u0131r. Balaca Arzunun atas\u0131 v\u0259 anas\u0131 uzaq qohumdurlar. H\u0259r ikisi talassemiya da\u015f\u0131y\u0131c\u0131s\u0131 olan c\u00fctl\u00fcy\u00fcn ilk \u00f6vladlar\u0131 – Arzu talassemiya x\u0259st\u0259si, ikinci \u00f6vladlar\u0131 Aqil is\u0259 talassemiya da\u015f\u0131c\u0131s\u0131 olaraq do\u011fulub.  <\/p>\n\n\n\n

Talassemiyal\u0131 u\u015faqlar \u00fcz\u0259rind\u0259n d\u0259l\u0259duzluq <\/strong><\/h2>\n\n\n\n

Haz\u0131rda Bak\u0131 A\u011f\u0131r Cinay\u0259tl\u0259r M\u0259hk\u0259m\u0259sind\u0259 talassemiyal\u0131 u\u015faqlar\u0131n ail\u0259l\u0259rini xaricd\u0259 m\u00fcalic\u0259 ad\u0131 il\u0259 aldadaraq k\u00fclli miqdarda pullar\u0131n\u0131 m\u0259nims\u0259y\u0259n \u00fc\u00e7 n\u0259f\u0259rlik qrupun i\u015fi \u00fczr\u0259 s\u0259s-k\u00fcyl\u00fc m\u0259hk\u0259m\u0259 ara\u015fd\u0131rmas\u0131 gedir. <\/p>\n\n\n\n

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Hakim Azad M\u0259cidovun s\u0259drliyi il\u0259 ged\u0259n prosesd\u0259 \u201cUrmedhelp\u201d v\u0259 \u201cMy Doc Tour\u201d adl\u0131 \u015firk\u0259tl\u0259rin sahibi Nurid\u0259 Seyidova v\u0259 dig\u0259r iki n\u0259f\u0259r \u2013 Aynur Bayramova v\u0259 Aysel M\u0259mm\u0259dova m\u00fctt\u0259himl\u0259r k\u00fcrs\u00fcs\u00fcnd\u0259 \u0259yl\u0259\u015fibl\u0259r. Onlar talassemiyadan \u0259ziyy\u0259t \u00e7\u0259k\u0259n u\u015faqlar \u00fc\u00e7\u00fcn toplanm\u0131\u015f v\u0259saitl\u0259ri d\u0259l\u0259duzluq yolu il\u0259 \u0259l\u0259 ke\u00e7irm\u0259kd\u0259 g\u00fcnahland\u0131r\u0131l\u0131rlar.<\/p>\n\n\n\n

M\u0259s\u0259l\u0259 il\u0259 ba\u011fl\u0131 talassemiyal\u0131 x\u0259st\u0259l\u0259rin valideynl\u0259rinin Daxili \u0130\u015fl\u0259r Nazirliyin\u0259 m\u00fcraci\u0259tind\u0259n sonra 2023-c\u00fc ilin fevral\u0131nda cinay\u0259t i\u015fi ba\u015flan\u0131l\u0131b. Adlar\u0131 sadalanan bu \u00fc\u00e7 \u015f\u0259xs\u0259 qar\u015f\u0131 Cinay\u0259t M\u0259c\u0259ll\u0259sinin 178.4-c\u00fc ( d\u0259l\u0259duzluq-x\u00fcsusil\u0259 k\u00fclli miqdarda ziyan vurmaqla t\u00f6r\u0259dildikd\u0259) madd\u0259si il\u0259 ittiham ir\u0259li s\u00fcr\u00fcl\u00fcb. <\/p>\n\n\n\n

M\u00fc\u0259yy\u0259n edilib ki, Nurid\u0259 Seyidova dig\u0259rl\u0259ri il\u0259 \u0259lbir olaraq 36 talassemiya x\u0259st\u0259sinin valideynl\u0259rinin etibar\u0131ndan sui-istifad\u0259 ed\u0259r\u0259k h\u0259min \u015f\u0259xsl\u0259rin \u00f6vladlar\u0131n\u0131 T\u00fcrkiy\u0259d\u0259 ilik n\u0259qli \u0259m\u0259liyyat\u0131 etdirm\u0259k ad\u0131 il\u0259 1 milyon manata yax\u0131n d\u0259l\u0259duzluq edib.<\/p>\n\n\n\n

H\u0259min u\u015faqlardan \u00fc\u00e7\u00fc vaxt\u0131nda ilik n\u0259qli edilm\u0259diyi \u00fc\u00e7\u00fcn v\u0259fat edib. H\u0259yat\u0131n\u0131 itir\u0259n u\u015faqlardan birinin atas\u0131 da d\u00fcnyas\u0131n\u0131 d\u0259yi\u015fib.<\/p>\n\n\n\n

\u0130\u015f \u00fczr\u0259 \u0259n son m\u0259hk\u0259m\u0259 iclas\u0131 iyunun 12-d\u0259 ke\u00e7irilib. N\u00f6vb\u0259ti iclas sabah \u2013 iyulun 3-d\u0259 ba\u015f tutacaq.<\/p>\n\n\n

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\n\tAz\u0259rbaycanda son 10 ild\u0259 diabet x\u0259st\u0259l\u0259rinin say\u0131 3 d\u0259f\u0259 art\u0131b\n<\/h2>\n\n

\n \u018fhalisinin say\u0131 \u00fc\u00e7 d\u0259f\u0259 az olan G\u00fcrc\u00fcstanda \u015f\u0259k\u0259r x\u0259st\u0259liyi il\u0259 m\u00fcbariz\u0259 \u00fc\u00e7\u00fcn Az\u0259rbaycanla t\u0259xmin\u0259n eyni h\u0259cmd\u0259 v\u0259sait ayr\u0131l\u0131r\n<\/p>\n <\/a>\n <\/div>\n

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\n \n \"\"\n <\/a>\n<\/figure>\n <\/div>\n <\/div>\n<\/article>\n\n\n\n

Talassemiya n\u0259dir?<\/strong><\/h2>\n\n\n\n

Talassemiya irsi qan x\u0259st\u0259liyidir. Daha \u00e7ox aral\u0131q d\u0259nizi h\u00f6vz\u0259si insanlar\u0131nda rast g\u0259lin\u0259n x\u0259st\u0259lik, q\u0131rm\u0131z\u0131 qan h\u00fcceyr\u0259l\u0259rind\u0259ki hemoqlabinin sintezinin pozulmas\u0131 il\u0259 \u0259laq\u0259dard\u0131r. Talassemiya da\u015f\u0131y\u0131c\u0131s\u0131 olan insanlar dem\u0259k olar ki, bunu hiss etmir v\u0259 x\u00fcsusi \u015fikay\u0259tl\u0259ri olmur. Talassemiya da\u015f\u0131y\u0131c\u0131s\u0131 olduqlar\u0131n\u0131 da \u00e7ox vaxt t\u0259sd\u00fcf\u0259n, ba\u015fqa probleml\u0259 ba\u011fl\u0131 m\u00fcayin\u0259 zaman\u0131 qan analizi n\u0259tic\u0259sind\u0259 \u00f6yr\u0259nirl\u0259r.<\/p>\n\n\n\n

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Da\u015f\u0131y\u0131c\u0131l\u0131q x\u0259st\u0259lik deyil, yoluxmur, m\u00fcalic\u0259 t\u0259l\u0259b etmir, evl\u0259nm\u0259y\u0259 \u0259ng\u0259l deyil. Valideynl\u0259rd\u0259n sad\u0259c\u0259 biri talassemiya da\u015f\u0131y\u0131c\u0131s\u0131 olduqda \u00f6vlad\u0131n talassemiya x\u0259st\u0259si olma ehtimal\u0131 s\u0131f\u0131ra b\u0259rab\u0259rdir. Lakin, ata v\u0259 anan\u0131n h\u0259r ikisi talassemiya da\u015f\u0131y\u0131c\u0131s\u0131 olduqda, onlar\u0131n \u00f6vlad\u0131 25% ehtimalla tamamil\u0259 sa\u011flam, 50% ehtimalla talassemiya da\u015f\u0131y\u0131c\u0131s\u0131, 25% ehtimalla is\u0259 talassemiya x\u0259s\u0259t\u0259si olaraq d\u00fcnyaya g\u0259lir.<\/p>\n\n\n\n

2015-ci ild\u0259n etibar\u0259n Az\u0259rbaycanda irsi x\u0259st\u0259likl\u0259rin qar\u015f\u0131s\u0131n\u0131n al\u0131nmas\u0131 m\u0259qs\u0259dil\u0259 nikahdan \u00f6nc\u0259 c\u00fctl\u00fckl\u0259rin tibbi m\u00fcayin\u0259d\u0259n ke\u00e7m\u0259si m\u0259cburi qaydada t\u0259tbiq edilir. Bu m\u00fcayin\u0259l\u0259r aras\u0131nda c\u00fctl\u00fcy\u00fcn talassemiya da\u015f\u0131y\u0131c\u0131s\u0131 olub-olmad\u0131\u011f\u0131 da yoxlan\u0131l\u0131r.<\/p>\n\n\n\n

Az\u0259rbaycan sakinl\u0259rinin t\u0259xmin\u0259n 10 faizi talassemiya da\u015f\u0131y\u0131c\u0131s\u0131d\u0131r <\/strong><\/h2>\n\n\n\n

D\u00f6vl\u0259t Statistika Komit\u0259sinin 2023-c\u00fc ilin sonuna olan m\u0259lumat\u0131na<\/a> \u0259sas\u0259n, tibb m\u00fc\u0259ssis\u0259l\u0259rind\u0259 qeydiyyatda olan talassemiya x\u0259st\u0259l\u0259rinin say\u0131 4916 n\u0259f\u0259rdir ki, onlardan 2361 n\u0259f\u0259ri yetkinlik ya\u015f\u0131na \u00e7atmayanlard\u0131r.<\/p>\n\n\n\n

2023-c\u00fc ild\u0259 385 n\u0259f\u0259r yeni talassemiya x\u0259st\u0259si qeyd\u0259 al\u0131n\u0131b v\u0259 onlardan 190 n\u0259f\u0259ri 0-17 ya\u015f aral\u0131\u011f\u0131nda olan u\u015faq v\u0259 yeniyetm\u0259l\u0259rdir.<\/p>\n\n\n\n

Respublika Talassemiya M\u0259rk\u0259zi r\u0259smil\u0259rinin 2018-ci ild\u0259 a\u00e7\u0131qlad\u0131qlar\u0131 m\u0259lumata g\u00f6r\u0259, Az\u0259rbaycanda talassemiya da\u015f\u0131y\u0131c\u0131lar\u0131n\u0131n say\u0131 bir milyondan \u00e7oxdur ki, bu da \u00f6lk\u0259 \u0259halisinin 10 faizini t\u0259\u015fkil edir.<\/p>\n\n\n

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\n\tAz\u0259rbaycanda h\u0259r onkoloji x\u0259st\u0259nin illik m\u00fcalic\u0259sin\u0259 c\u0259mi 800 manat ayr\u0131l\u0131r\n<\/h2>\n\n

\n Onkoloq h\u0259kim deyir ki, bu m\u0259bl\u0259\u011f \u00e7ox vaxt diaqnozu d\u0259qiql\u0259\u015fdirm\u0259k \u00fc\u00e7\u00fcn laz\u0131m olan m\u00fcayin\u0259l\u0259r\u0259 bel\u0259 yetmir\n<\/p>\n <\/a>\n <\/div>\n

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\n \n \"\"\n <\/a>\n<\/figure>\n <\/div>\n <\/div>\n<\/article>\n\n\n\n

B\u0259z\u0259n ilik n\u0259qli \u00fc\u00e7\u00fcn uy\u011fun donor g\u00f6zl\u0259m\u0259k m\u00fcmk\u00fcns\u00fcz olur<\/strong><\/h2>\n\n\n\n

Az\u0259rbaycanda Nazirl\u0259r Kabinetinin 2006-c\u0131 ild\u0259 imzalad\u0131\u011f\u0131 q\u0259rardan b\u0259ri q\u0259bul edil\u0259n d\u00f6vl\u0259t proqramlar\u0131 talassemiyal\u0131 x\u0259st\u0259l\u0259r\u0259 tibbi yard\u0131m\u0131n t\u0259kmill\u0259\u015fdirilm\u0259sin\u0259 y\u00f6n\u0259lib. Proqrama \u0259sas\u0259n, talassemiyal\u0131 x\u0259st\u0259l\u0259r\u0259 d\u0259rman preparatlar\u0131n\u0131n verilm\u0259si, qan v\u0259 s\u00fcm\u00fck iliyi k\u00f6\u00e7\u00fcr\u00fclm\u0259si \u0259m\u0259liyyatlar\u0131 t\u0259m\u0259nnas\u0131z h\u0259yata ke\u00e7irilir. Talassemiya M\u0259rk\u0259zind\u0259 h\u0259ms\u00f6hb\u0259t oldu\u011fumuz x\u0259st\u0259l\u0259r v\u0259 yax\u0131nlar\u0131 da bunu t\u0259sdiql\u0259yirl\u0259r. <\/p>\n\n\n\n

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Amma x\u0259st\u0259nin v\u0259ziyy\u0259ti a\u011f\u0131rla\u015fan zaman ilik n\u0259qli \u0259m\u0259liyyat\u0131n\u0131n d\u0259rhal ke\u00e7irilm\u0259si z\u0259rur\u0259ti yarana bilir. D\u00f6vl\u0259t proqram\u0131na \u0259sas\u0259n n\u00f6vb\u0259 v\u0259 uy\u011fun donor g\u00f6zl\u0259m\u0259k \u00e7\u0259tinl\u0259\u015fir. Bel\u0259 durumlarda \u00f6vladlar\u0131n\u0131 itirm\u0259k ist\u0259m\u0259y\u0259n valideynl\u0259r bu \u0259m\u0259liyyat\u0131 xaricd\u0259 \u00f6z v\u0259saitl\u0259ri v\u0259 ya tapd\u0131qlar\u0131 yard\u0131m hesab\u0131na h\u0259yata ke\u00e7irm\u0259y\u0259 \u00e7al\u0131\u015f\u0131rlar. S\u00f6z\u00fcged\u0259n m\u0259hk\u0259m\u0259 i\u015find\u0259 z\u0259r\u0259r\u00e7\u0259kmi\u015f qismind\u0259 tan\u0131nan 36 talassemiyal\u0131 u\u015fa\u011f\u0131n valideynl\u0259ri kimi. <\/p>\n\n\n\n

\u201cTalassemiyan\u0131n bilin\u0259n yegan\u0259 radikal m\u00fcalic\u0259si s\u00fcm\u00fck iliyi transplantasiyas\u0131d\u0131r. Y\u0259ni z\u0259d\u0259l\u0259nmi\u015f v\u0259 ya tam m\u0259hv olmu\u015f s\u00fcm\u00fck iliyinin yeni s\u00fcm\u00fck iliyi h\u00fcceyr\u0259l\u0259ri il\u0259 \u0259v\u0259z edilm\u0259si. \u0130lk n\u00f6vb\u0259d\u0259 donorlar bac\u0131 v\u0259 qarda\u015flar ola bil\u0259r. \u018fg\u0259r onlar uy\u011funm\u0259zs\u0259, o zaman donor yerli v\u0259 beyn\u0259lxalq s\u00fcm\u00fck iliyi banklar\u0131nda axtar\u0131l\u0131r. <\/em><\/p>\n\n\n\n

Amma bu uzun v\u0259 m\u0259\u015f\u0259qq\u0259tli prosesdir. B\u0259z\u0259n uy\u011fun donor tapmaq m\u00fcmk\u00fcn olmur. Bel\u0259 halda x\u0259st\u0259l\u0259r \u00e7ox b\u00f6y\u00fck m\u0259bl\u0259\u011fl\u0259r qar\u015f\u0131l\u0131\u011f\u0131nda xarici \u00f6lk\u0259l\u0259r\u0259  \u00fcz tutma\u011fa m\u0259cbur olur<\/em>lar<\/em>\u201d<\/em>, – h\u0259kim Ayd\u0131n \u018fliyev deyir. <\/p>\n\n\n\n

\u201cT\u00fcrkiy\u0259d\u0259 m\u00fcalic\u0259 \u00fc\u00e7\u00fcn 80 min manat ist\u0259yirl\u0259r\u201d <\/strong><\/h2>\n\n\n\n

Z\u00f6hr\u0259 Sar\u0131yeva deyir onlar da n\u0259v\u0259si Arzunun s\u00fcm\u00fck iliyi n\u0259qli \u0259m\u0259liyyat\u0131 olunmas\u0131n\u0131 ist\u0259yirl\u0259r. \u00dcmid edirl\u0259r ki, qarda\u015f\u0131 Aqil onun \u00fc\u00e7\u00fcn donor ola bil\u0259c. <\/p>\n\n\n\n

Amma \u0259g\u0259r qarda\u015f\u0131 Arzu \u00fc\u00e7\u00fcn uy\u011fun donor hesab edilm\u0259s\u0259, onlar da xarici \u00f6lk\u0259y\u0259 \u00fcz tutmal\u0131 olacaqlar. T\u0259bii ki, laz\u0131m olan v\u0259saiti tapa bils\u0259l\u0259r.<\/p>\n\n\n

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\n\tAz\u0259rbaycanda d\u00f6rd\u00fcnc\u00fc ildir t\u0259tbiq olunan tibbi s\u0131\u011forta nec\u0259 i\u015fl\u0259yir?\n<\/h2>\n\n

\n H\u00f6kum\u0259tin m\u0259lumat\u0131na g\u00f6r\u0259, \u00f6t\u0259n il \u0259halinin 47 faizi icbari tibbi s\u0131\u011fortadan yararlan\u0131b, 360 min\u0259 yax\u0131n \u0259m\u0259liyyat v\u0259 prosedur icra olunub\n<\/p>\n <\/a>\n <\/div>\n

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\n \n \"\"\n <\/a>\n<\/figure>\n <\/div>\n <\/div>\n<\/article>\n\n\n\n

Z\u00f6hr\u0259 Sar\u0131yevan\u0131n s\u00f6zl\u0259rin\u0259 g\u00f6r\u0259, maraqland\u0131qlar\u0131 zaman \u00f6yr\u0259nibl\u0259r ki, qon\u015fu T\u00fcrkiy\u0259d\u0259 uy\u011fun donor tapmaq v\u0259 \u0259m\u0259liyyat \u00fc\u00e7\u00fcn ortalama 80 min manat pul t\u0259l\u0259b olunur. Ail\u0259nin is\u0259 bu m\u0259bl\u0259\u011fi \u00f6d\u0259m\u0259y\u0259 g\u00fcc\u00fc yoxdur. <\/p>\n\n\n\n

\u201cH\u0259l\u0259 m\u00fcalic\u0259y\u0259 pulumuzun \u00e7\u0131xd\u0131\u011f\u0131 olmay\u0131b. A\u00e7\u0131\u011f\u0131, pulla olsa idi, bu u\u015faqlar\u0131 \u00e7\u0259tin ki m\u00fcalic\u0259 etdir\u0259 bil\u0259rdik. \u0130ndi g\u00f6zl\u0259yirik, Aqilin  s\u00fcm\u00fck iliyi Arzuya uy\u011fun g\u0259ls\u0259, \u0259m\u0259liyyat ed\u0259c\u0259kl\u0259r. B\u00fct\u00fcn \u00fcmidimiz onad\u0131r\u201d,<\/em> – Z\u00f6hr\u0259 Sar\u0131yeva quca\u011f\u0131nda m\u00fcrg\u0259l\u0259y\u0259n n\u0259v\u0259sin\u0259 baxaraq deyir. <\/p>\n\n\n\n

Bizi izl\u0259yin<\/strong> \u00a0\u2013<\/span>\u00a0 Twitter<\/mark><\/a><\/strong>\u00a0|\u00a0Facebok<\/mark><\/a><\/strong>\u00a0<\/mark>| <\/strong>Telegram<\/mark><\/strong><\/a><\/strong><\/p>\n","protected":false},"excerpt":{"rendered":"

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